Archive for the ‘medicine’ Category

PostHeaderIcon It can be lonely out here…

It has been a long, long while….. tardis distance, galaxy far far away, you get the picture. It’s been a long time to be silent. I’m sorry. It’s not like this blog has a rabid fan base, but I started a story, and every village story teller must finish the story. Why I stopped is hard to explain. My reasons changed the further I got away from it. My heart changed the longer I let it beat. But the story has not changed, and the truth (As I know it) must be told.

I am trying to do my experience justice. I have struggled since post #3. I wanted to write and continue on, but I just didn’t have the heart. I hurt to remember, to know what I learned, to know what I lost, to see what I gained. I thank God for my chance he gave me. Yet at times I hate him for the choices he put in front of me. I want this to be written, but like the petulant child, I don’t want to do the writing. I don’t want to do the homework. I find it very hard to connect my experience with people. My ego says that people cannot understand, cannot care enough for it to be worth my while. And like an ego it needs to be deflated.

I was worried that after writing it all out none of it would matter. No one would remember me for this. No one would remember this for me. I feel the pain of Nephi who struggled as he finished his record. I find it fitting to paraphrase him and hope none think ill of me for doing so. Book of Mormon, 2nd Nephi, Chapter 33

“And now I cannot write all the things which I learned; neither am I mighty in writing, like unto speaking; for when a man speaketh by the power of the Holy Ghost the power of the Holy Ghost carrieth it unto the hearts of the children of men.

But behold, there are many who will cast these things away which are written and esteem them as things of naught.

But I have written what I have written, and I esteem it as of great worth, and especially unto my people. For I pray continually for them by day, and mine eyes water my pillow by night, because of them; and I cry unto my God in faith, and I know that he will hear my cry.”

I came across the testimony of a man who did not search for god until after he had his own personal peace. He only then searched for god because realized he was not yet truly at peace. His Searching took him to many churches, many faiths, many religions. And when he found the peace he studied it, he partook of it, he spread it to others. He testified of his appreciation for receiving the “Peace which passeth all understanding” . Having felt that peace in my experience, I realized that in my arrogance, I thought that no one would understand. In my pain, I thought I could not give it to others. In my humility, I will continue to try.

Leighton Ford — “God loves us the way we are, but too much to leave us that way”

Kevin Steele

PostHeaderIcon Crohn’s and Me!

WARNING:  Since my experience in the hospital and going along with my Crohns, I no longer have a TMI (Too Much Information) filter when it comes to bodily functions/malfunctions, Hospitals, and other possibly gross things.  I don’t mean to offend anyone if what I say sounds gross – SORRY!!

In 2004 I started having some health problems, including bleeding from places I wasn’t used to bleeding, pooping a TON, and losing weight without even trying.  Since then I’ve heard the question “What diet plan are you on” like 50 million times…..  Trust me, you don’t want this one.   After a fun process, which would include a Barium X-Ray (YUCK), and the first of three colonoscopies before I was 30, was diagnosed with Crohns disease.

My wife has been my help and support through all of this.  The days where I couldn’t even get out of bed, or the ones where I spent most of it on the toilet.  The days where I would drag myself to work white as ash, and just muddle through.  All the while worrying about what would be next.  My life is a unknown factor because of my Crohn’s, my future is unknown, my ability to finish my work on a daily basis, whether my kids will have crohn’s is a big unknown for me too….  A lot of things to be worried about with all the other things.

My wife, family and friends have been there for me, supporting me, supporting Kaylene when I was down and out, offering help, suggestions, prayers, and blessings.  Thanks to all of you who helped, supported, even those of you who just sat there and listened to me.

Things You might not know about Crohn’s disease:

Where does Crohn’s affect you?

Crohn’s disease is an -ONGOING- disorder that causes inflammation in the digestive tract, but as one of my Baylor friends, and my first fellow Crohn’s-ian told me, this affects you from “Gum to bum”.  It more commonly affects the section where your Small and Large Intestines connect, called the ileum.

What can you do about it?

There are many ways to treat Crohns with methods ranging from Western to Eastern Medicines.  My approach has been mainly Dietary with monitoring,  and some Medications.  Options include, but are not limited to…

  • Medicine’s
    • Pentasa (5-ASA for reducing the recurrence of inflamation) – I started on this 16 pills a day – NO FUN!
    • Imuran (Immuno-suppressant to maintain an overactive system) – Currently at 150mg a day  🙂
    • Prednizone (Steroid for Inflammation) – Not my recommendation unless you are a sever sufferer.
    • There are others such as Remicade, but I have no experience with them
  • Diet
  • Acupuncture
  • If you know of others, please feel free to post in the comments.

Possible Genetic Factor:

About 20 percent of people with Crohn’s disease have a blood relative with some form of inflammatory bowel disease.  In my case I know I have an Aunt (Love you Penny) and a cousin with Crohn’s, and my little brother deals with Ulcers (Shout out to Dallin).

Common symptoms of Crohn’s disease:

  • Abdominal pain
  • Diarrhea
  • Rectal bleeding
  • Weight loss
  • Intestinal ulcers
  • Arthritis
  • Skin problems
  • Fever

Common Misspellings:

Chron’s Disease, Croan’s Disease, or Crone’s Disease (No, this is not an old ladies disease)…..


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